Ali Bin Sarwar Zubairi ( Section Head of Pulmonary and Critical Care Medicine, Aga Khan University, Karachi. )
Madam, I had an opportunity to read the editorial on national guideline and ILD PAK registry report published in September 2016 issue of JPMA. I appreciate the effort by Dr. Mosavir Ansarie to develop the registry. This is the first published data from Pakistan highlighting the importance of this neglected disease for decades.
Interstitial Lung Disease (ILD) is a difficult diagnosis which requires multi-disciplinary approach comprising a team of trained Pulmonologist, Radiologist and Pathologist with special interest in this disease to work on the registry. Every Pulmonologist is not expected to be an expert in ILD. The predominant participating centres were private clinics or government hospitals in PAK ILD registry are not identified in the report. To our knowledge, the ILD PAK registry has data from private centers with significant limitations.
I wish if the group had a liaison with major tertiary care centers of Pakistan with an identified key person before publication of this report so that a larger population with disease patterns would have been identified. We need to work together for a better future of patients with ILD for the prevention and treatment outcomes for this disease.